First let me apologize for the long blogging hiatus. I have an excuse this time since nothing is really happening. It’s been 5 weeks since I ended radiation and I feel like I’m almost back to normal*. Towards the end of radiation I was exhausted and I was told that could last up to two weeks after the final dose. It ended up taking about a week and a half till I was able to do a lot of physical activities (sports, exercise, light saber duels). The only residual effect from radiation is a cough from inflamed tissue. Dr. Ram said some people have had this up to 9 months after.
So what’s next? I saw Dr. Ram on July 23rd and expected him to schedule the next PET scan to see if all the treatment is working. Dr. Ram said it would be better to wait and decided to push it out two months. So my PET scan is scheduled for Sept 24th, and I see Dr. Ram again the following week (10/1) for the results.
Dr. Ram basically said he wanted me to get back to my normal life. The goal is to get back to normal and not have to come in for treatments ever again. There is no guarantee that things have worked or that I’ll continue to be disease free, but for now there is no reason to think that it won’t. On the other hand in some ways it feels like a waiting game till the next scan. I just have to keep remembering that it’s not a waiting game, it’s a “things are awesome right now, or slightly less than awesome right now” game.
*I feel pretty good physically right now but can tell I’m not back up to 100%. A friend told me that you can get back up to 90% pretty quickly but that it could take months to get back to 100%.